The other day someone asked what my plans are for Purim. I think, like every other parent of food-allergic children, my heart skipped a beat and sunk to my feet. Not this time of year again! Purim should be filled with fun, excitement, and laughs, but for a family dealing with food allergies, it’s pure fear.
If we go to the Megillah reading, what nosh will be around? What will be in the mishloach manot (food baskets) that people send us? Will anyone bother to even send them to us? What do we do about the Purim seudah (festive meal)? Do we go to the community event or stay home once again? How do I make it so my children can feel the excitement and fun of the Purim holiday and not feel left out and depressed?
My son was allergic to wheat and anaphylactic to eggsThree weeks before my middle son’s first Purim (four years ago), we learned that he was allergic to wheat and anaphylactic to eggs (this means a potentially deadly reaction if not immediately treated). At the time, we were still waiting to find out the extent of his food allergies. We knew of these two because he had eaten one of his older brother’s pancakes and had his first anaphylactic reaction. So, only weeks away from Purim and not fully understanding what was okay and what was not, we realized this was going to be a hard holiday.
Between doctor appointments and packing for our move to a new house, I accepted a friend’s invitation for the Purim meal. Purim night came and at the Megillah reading, I noticed my son become more and more blotchy, and soon he was breaking out in hives. Who knew what he was reacting to, but that ended the night pretty quickly. The next day, as the mishloach manot started arriving, my tears poured harder and harder as I realized that none of the Purim treats were safe.
Only days before, our allergist had restricted us from all of the top eight allergens (wheat, egg, peanut, tree nuts, shellfish (which are not kosher in any case), fish, soy and dairy). It didn’t leave us with much to eat, but it was just enough to get by, as long as I was cooking. At the Purim meal, I felt left out and anything but joyous. As a nursing mother, I too was on a total elimination diet from all his allergens and suspected allergens. This meant that I couldn’t eat any of the food, and food is so much a part of this holiday.
I decided then and there that the next year we would make the meal at home, as I wanted my son to get to be a part of the experience. His list of allergens had already grown from the year before to almost twenty fully diagnosed food allergies. We would start new traditions.
So when the next year came, at the Megillah reading, we sat outside and watched as everyone enjoyed the festivities. I had brought his safe cookies for him to eat, but as I looked at his face, I saw tears rolling down his cheeks. He knew he was missing out. The next day he refused to go with his father to deliver the Purim baskets, and even though we offered him as many of his safe cookies as he wanted, all he really wanted was his big brother’s hamantash.
He had handmade chocolates, gluten-free hamantashen, and boxes of apple juiceThat year, most people did not bother sending us mishloach manot, and let me know they just didn’t know what was safe. That’s when I got my bright idea to spend the coming year perfecting a mishloach manot that was safe for his allergens, and one that he could share with the community. It would bring awareness to other people and excitement for him.
By my son’s third Purim, his baby sister joined him in the food allergy world. By then we were pros at this. Though she threw us some challenges by being anaphylactic to foods like chicken and chocolate, I was still determined to make my son’s Purim the best ever. My son got all dressed for the Megillah reading, and with a beaming smile, grabbed his bag of goodies to share with his friends. He had handmade chocolates, gluten-free hamantashen, and boxes of apple juice. He also made his own gragger (noisemaker) out of materials that were latex-free and safe for him to touch, as the synagogue ones would be covered with his allergens.
His smile during the Megillah reading was infectious! He shook his gragger harder than I have ever seen, as if he was making up for the past years. And the best part of it, when it came time for everyone to be eating and having a grand old party, he chose to stay with his baby sister and make her laugh so that she would not feel left out.
The next day, he proudly delivered his mishloach manot to everyone in the community. It contained a message explaining food allergies, and how he had taken his own pushka (charity box) money and had given it as a donation in the name of his community to an online support group I am a part of, consisting mainly of Jewish families. It is through them I got the strength to continue, and to make events like Purim as special as they would be if we didn’t have food allergies.
That year, also, we didn’t really get any mishloach manot. But it didn’t matter, as we had found a way to make it exciting again. We realized it’s not really about the food, but about how we go mentally into the holiday. Last year we went into the holiday feeling completely joyous, and the holiday was truly a happy one.
So now, here we are again. Purim is around the corner. This year, my son has been counting down the days. My kids are constantly dancing and singing on top of their lungs, “Mishenichnas Adar, Marbim B’Simcha!”—when Adar comes in, we increase in our joy. He has his costume picked out, and he has been telling me all the different things he wants to put in his mishloach manot this year.
We are going to do our utmost to passionately enjoy this Purim! Fortunately, he and his sister have outgrown many of their allergies. We have gained wheat back, which means that they can finally eat challah. This will also be the first year they can have grape juice on Purim. We have gone from a total of forty-plus allergens down to less than twenty between the two of them.
There is no question that the extra work needed to make Purim safe for them is completely worth it, when I see their eyes light up and their love for Judaism grow. We will still have the epi-pens (the injection given in case of an anaphylactic reaction) in our hip packs and plenty of Benadryl on us. The fear that someone our children trust will give them something to eat to which that they are allergic is still there. But we are going to do our utmost to passionately enjoy this Purim!
I bought the kids chicken costumes this year and will make a sign that says, “I am anaphylactic to eggs, so please don’t feed me any food without my mommy’s permission!” That fear will never go away as long as the kids are still allergic. But the fear that they will be turned off from Judaism because the celebrations have only brought them heartache is gone, and because of that, my heart skips a few less beats and doesn’t sink as far into my feet when I hear it’s Purim time once again.
Here are some of the recipes I have used for the traditional Purim foods. They are allergy-free and absolutely delicious!
Homemade chocolate candies
- 1 stick Kosher for Passover margarine (or, if safe, regular)
- 1 bag Enjoy Life chocolate candies
- 1 tub SunButter
- Candy molds
Melt the stick of margarine with the chocolate. Coat sides and bottom of mold with chocolate and then stick in freezer for 10 minutes. Fill with SunButter and then top off with more chocolate till it’s filled to the top. Put back in freezer to finish setting.
Gluten-free hamentashen
- 1 box Cherrybrook Kitchen sugar cookie mix
- Orange juice
- Filling
- Margarine
Make sugar cookie mix, but use half the amount of margarine, and instead of non-dairy creamer, use orange juice. Make into balls and flatten out in hand. Put filling in the middle and fold over sides to make triangle. Bake.
Water Challah
- 3 cups flour
- ¼ cup sugar
- ¼ cup oil
- 1¼ cups water
- ½ tsp salt
- 1 tbsp dry yeast
Put yeast, ¾ cup water, and sugar together till it bubbles. Mix dry and wet ingredients, except the rest of the water. Slowly add the water in until it’s the right consistency, if it is too dry.
Egg-free cake
- 1 box of cake mix
- 1 can of soda pop
Mix cake mix with soda pop. (Change the type of soda pop depending on the flavor: e.g., if you do chocolate use Coke, and for vanilla use either ginger ale or Sprite.) Put into cake pan or cupcake tins and bake until it is cooked through. It usually takes the longer of the times written on the box.
Egg-free kreplach
Dough:
- ¼ cup oil
- 2 tsp salt
- 1 cup water
- 4 cups flour
Filling:
- Ground lamb or beef (my daughter is allergic to beef so we use lamb)
- 1 onion
- 1 shredded zucchini
- Italian spice
- Salt
- Pepper
- A little bit of oil
Mix dough and put in a plastic wrap to sit. Dice onion and cook in oil till clear. Add meat and brown, then add the zucchini. Add spice to taste. Roll out dough and cut squares. Fill, wet edges, and than fold into a triangle and seal closed. Either boil: let boil till they float and then give them five minutes; serve in soup. Or fry: fry on both sides with a bit of oil till browning; great to dip in honey.
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