The pain of my miscarriages is in the past now. Four years and three children later, it is hard to recall the sharpness of loss, the huge question mark of the future, not knowing whether to dread a negative or positive result from a pregnancy test. Now, when I remember the miscarriages, I mostly just feel guilt. Guilt for not remembering more clearly, guilt for not using the suffering of the past as a vehicle of growth in the present.
Day-to-day reality is a glaring mockery of my best intentionsThere is a powerful statement in Psalms: "The mother of her children is happy" - "Aim habonim s'meichah" (113). How can I be filled with anything but joy from the beautiful family G‑d has granted me? One can favorably judge someone who has known nothing but blessing, baby after baby, sometimes giving a kvetch about her very full life. But how can someone who has longed for children feel overwhelmed and inadequate? How dare she await, even in her secret thoughts, the time when the pitter-patter of little feet will be replaced by the clomping of youth-sized shoes? Isn't that ungracious?
But the day-to-day reality is a glaring mockery of my best intentions. Before all the miscarriages, I was granted two healthy children. I found their toddlerhood and preschool years very challenging. During the years of waiting and of loss, I was sure that if only G‑d would listen to my tears, I would do better this time. I would have more patience, I would invest myself into providing more consistent and patient discipline, I would provide more nutritious meals.
Yet, here I am, once again, struggling with the guilt and depression in the face of my maternal failings. Don't I remember the waiting, the prayers recited, the personal work undertaken, and, of course, the tears shed? Why can't I reach back into the past experience, to draw something good out of it, to appreciate my children better now, instead of calculating how many years until even the youngest children are speaking clearly and rationally, until I am past the physical challenges of diaper changes and protecting children from the physical aggression of their siblings?
Of course, there is a certain dishonesty in comparing the circumstances with my first two children in contrast to the next three. You see, the first child we received after the waiting, the one we prayed and prayed for, the only child we had a chance to really ask for from our hearts since all the rest came with such rapidity, this much anticipated child has PDD-NOS (PDD-NOS stands for Pervasive Development Disorder Not Otherwise Specified.) It used to be called "autistic spectrum," and without getting into all the details of the diagnosis, it means that he is very difficult to raise, although we have high hopes that he will grow to be a normal, functioning member of society.
I thought I would be happy with any babyOften, the literature about special needs children tends to romanticize raising a special needs child, perhaps in response to the years where special children were considered a stigma. But there are different types of special needs that a child can have, and you cannot compare hearing impairment to autism to Down's Syndrome to Cystic Fibrosis. Each type of challenge is different, and even though, from reading some of the literature, you might think that all special needs children are giving and sweet and bring out the best in your other children, day-to-day reality is a little less glamorous. While I sincerely believe that my son was given to my family to raise because that is what is best for all of us, I find raising him to be stressful and difficult and replete with feelings of inadequacy.
And I think that this is the real reason for the guilt when I remember my miscarriages. Because at the time, I thought I would be happy with any baby, even one with special needs. But now that I have been granted the child that I prayed for, and he does have special needs, I am finding that specialness to be more than I bargained for.
Perhaps one day I will have a better perspective, when I am not immersed in the daily struggle of coping. Then, when the challenge is past, when intellect can once again dominate over emotions, when I can articulate the correct perspective and mean it, I might be able to reconcile the different chapters of my history. Perhaps I will see that all those years of praying were to have a child with PDD - because he really is so special that he needed to be prayed for with an extra measure of passion - and I needed extra merit to be granted such a child.
Or, perhaps, I will realize that the waiting was for me, to build me into a stronger person so I could better mother my special son. Or perhaps I will come to an altogether different understanding of circumstances, which, by necessity, is concealed from me while I am immersed in the struggle. And perhaps, as is so often the case, clarity will be denied me in this world, and I will achieve a true level of faith where I don't need to understand, because I will feel with certainty that whatever the reason, it was really for everyone's ultimate good. Perhaps.
Chicago, IL
May you be blessed to be among the mothers of children with 'special-ness' May your love of Ha'shem and the love of your children help to increase your personal growth.
When children are growing, they often have pain in their ankles, knees and other joints. Growing pains - the cost of their longing to grow. May you find strength in your own 'growing pains' as Ha'shem helps you to learn to rely more on Him. May all of your children be special in their own right. Again, my you be heavily blessed for your patience, understanding and for the words you have written here - you have obviously found that there are many here that can understand your feelings.
I will share your story. Thank you.
I had cancer. I did not, and DO not, beat myself up over it, wondering what I did wrong (physically, spiritually) to "deserve" it. I'm not superstitious, I don't believe in fate, I don't believe that my cancer was a punishment from G-d. I'm not a bad person and didn't "deserve" to have cancer. It was the luck of the draw. IMHO, the fact that you have a PDD child is nothing personal between you and G-d; it just IS. If you can turn the challenge into something positive, more power to you. But do not feel that you are in any way a bad person, an inadequate mother, a defective human being, if you have thoughts that are not the most noble. YOU ARE HUMAN! Every child is a challege in its own way because neither the child nor the parent is perfect. Allow yourself that and let go of any guilt; it's useless and saps vital energy.
coral springs, FL
My life is insane, I hurt everyday and have no support, no respite and at the end of the day when my whole family sleeps I cry and cry.
I doubt they will publish this letter as I once wrote a long letter like you have. .spilling my guts and stating that I have no support in the community and although my husband and I are decent, kind, loving, supportive people of others we have lost every friend we have and have never made new ones...because our pre children friends have dropped out of the picture one by one (because they can not relate to our lives with their normal lives & kids) and new friends are impossible to make in this boat with this horrifically isolating disorder effecting every move of every day in your existence. Bitter and in Pain...G-d forgive me!
Casselberry, Florida
jewishorlando.com
Turtle Creek, PA
You are SO right, this isn't the end to this story. G-d has both a plan and purpose for your family. and because it is on a spiritual level beyond our understanding we find it hard to cope with the exhaustion it brings daily. I assure you, G-d has a purpose! and once day you will find yourself sincerely thanking Him that you have your SN kid. just wait!
Palmyra, Va
I want to know how you and others deal with concerns on special schools (public) vs. the torah school inclusion goals... there still IS so much hope, as I do believe autism spectrum can be treatable with therapies and biomedical strategies.
Please write more articles or perhaps we can write one interviewing other moms like us. The link for me here is that this is about COPING and growing through a torah way...Tammy, Thank you for connecting others like us through your writing
Wynnewood, PA