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Growing Up in the Shadow of OCD

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When I remember the mother of my childhood, I remember her washing the dishes, scrubbing the floor, or checking and doubling-checking the gas burners to make sure they were completely off, and we wouldn't all be gassed in our sleep. She had a special chant she used as she checked the burners. Standing with her hands on her hips and one finger outstretched, she began, "Silver. One. Two. Three. Off." And again, "Silver. One. Two. Three. Off." If she was interrupted, she would begin again. "Silver. One. Two. Three. Off." But even if she wasn't interrupted, she would begin again. Leaving the house was an anxiety-ridden process of checking, and double checking, to make sure there would be a house to return to. Needless to say, my mother was always late.

Her rules were all that stood between her and the abyss of anxietyYears later, as an adult, I would begin to understand her anxiety about being gassed as an inter-generational inheritance from my grandmother's adolescence interred in the concentration camps. But as a child I couldn't begin to make the connection between our enormous, white, antique gas oven, and my silent, sad, and obese Yiddish-speaking grandmother, who shopped and cooked in preparation for the great famine that never arrived.

The other memory I have of my mother is of her talking on the phone. Besides anxiety, paranoia was her constant companion. She was always checking to make sure we hadn't been kidnapped, especially by my father from whom she was divorced. If I went to a friend's house, she would call to make sure I was there. If I went to school early or late, she would call the school.

And while all families have rules, ours were especially rigid. Our very safety, our continued existence, depended on following them exactly. Failure to follow the rules invoked my mother's wrath, because her rules were all that stood between her and the abyss of anxiety and paranoia that constantly threatened to engulf her.

By the time I was eleven years old, I had assisted my father in proving her mental instability in order for him to gain custody. At that time, it was rare for a father to gain custody of an eleven-year old girl. The judge and court-appointed psychiatrist had to grapple with whether being raised by a mentally-impaired mother was preferable to being raised without a mother. Ultimately, what swayed them was my own insistence upon leaving.

At age eleven, I left my mother's house like a refugee, without time to back a bag, or even a set of pajamas. I went to court that morning with my mother, and left court to live with my father. My own dramatic leave-taking was a less traumatic mirror of my grandmother's adolescent leave-taking, torn from her home and family without time to pack a bag, and loaded onto a cattle-car bound for the unknown.

For my mother, my choosing to live with my father was an unspeakable betrayal. Ultimately she came to the conclusion that my father had drugged, and brainwashed me against her. She never understood that it was her own unspeakable anxiety and paranoia that drove me away.

When I went to live with my father, I locked my childhood memories of her insanity in a box, where they remained terrifying and unspeakable. Ultimately, I locked my own femininity in that box as well, since the emotional terrain of women seemed somehow linked to my mother's insanity. I too lived in the shadow of an abyss, the abyss of who she was, and what it meant that she was my mother.

Was being raised by a mentally-impaired mother preferable to being raised without a mother?Even as an adult, this box remained locked against memory, and the gentle probing of my therapist. It was only motherhood, and the birth of my daughter, that would ultimately prove strong enough to open the box. As an adult, I came to understand my mother in light of the obsessive–compulsive disorder she suffered from, which structured her behavior according to rigid and repetitive lines. According to our uniquely Jewish family history, my grandmother's psychosocial development was gravely interrupted in early adolescence, when she was swallowed up in the fury of Hitler's rage. After the war, she was spit back out into premature adulthood in a DP camp, where she married my grandfather and gave birth to my mother, despite the physical and emotional depletion of her body and soul.

My grandparents' marriage didn't last, and my grandmother raised my mother alone, a Yiddish-speaking immigrant in New York, in a nursery filled with Yiddish-speaking ghosts who whispered Holocaust tales and revenge fantasies to my mother in place of nursery rhymes and fairy tales. For my grandmother, and for my mother, her only daughter, the wolves were real, only it wasn't the witches being fed to the ovens. It was everyone.

I can't blame my mother, whose illness and family history prevented her from being able to mother, nor can I blame my grandmother for raising a daughter unable to mother. I can only wonder at the countless cross-generational tragedies only now being felt, only now being spoken of. My grandmother's experiences in Hitler's death camps were too much for her to be able to process in one generation. My mother, born at the end of the war, nevertheless fell backwards through time to become as traumatized by the war as my grandmother herself.

As a daughter, confronting this Pandora's box of mental illness and trauma of early and unnatural separations, of anxiety to keep children safe in a world where they were hunted as prey, I too am overwhelmed by the enormity of speaking out and mourning these tragedies. And yet, I am also a mother, determined to mourn these ghosts in order to prevent this inheritance from being passed down to haunt and hurt another generation.

By Robyn Cuspin
Robyn Cuspin is a therapist living in Israel.
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Discussion (20)
August 6, 2012
My mum has OCD too
It's hard to live with, she's trying to get help, but it's slow....

Anybody have advice?
Anonymous
houston , texas
July 8, 2012
agree with author
an eleven year old's leaving is justified.
I agree with Jerusha & Walter. Living with an OCD mother all my life, I have had trouble dealing with emotional issues. I had to deal with hard rules & perfectionism, which i have finally shrugged off 3 yrs back, I am 26. Yes, it took me that long to understand what I was dealing with & to reach the breaking point of my patience and that my mother will not be happy with all my efforts to meet her rules, as she can never be happy, as she doesn't wish to try nor knows how to. Happiness for her are her rules.. trying to meet them still is no longer possible or an option, without losing sanity, for an adult like me. I am asked to sympathesize & to keep on compromising, as i always have done, without any effort on her part to heal. I felt my sanity at stake - south asian..
Anonymous
karachi, pakistan
May 29, 2012
I AM an ocd sufferer too
growing up in a house with an ocd mother is extremely unhealthy and it's nearly impossible to be healthy yourself. a mentally ill parent has to get help and recover or take medication.. it is not called selfish if an 11 yr old leaves her ill mother, she could only have stayed with had her mother been keeping her illness under control. she didn't walk out on her mother who was physically ill or hd some difficult idiosyncracies. i'm a mother to two children and suffer from ocd, but i am on medication, under a psychologist and trying to keep my illness under control. no child walks out coz their mother is a little difficult. ocd sufferers don't just inconvenience or cause discomfort to th ppl aound them, they can make you ill too.. The letter writer does not once mention her mother in a negative way, doesn't blame her, she's just writing her experience. A child will become unhealthy if she has to parent her parents. and what to actually do in such situ does not have one global answer..
Anonymous
gateshead
February 15, 2012
A point to consider...
OCD may affect thousands, and of those affected who acknowledge the problem I have no doubt it is easier to live. It is the sense of the unknown that creates fear in those affected by mental illness. However, not all people with mental health issues such as these admit they have problems, and as a result spin a web of fear and denial around themselves and those close to them. My mother is one of these. For over 40 years she has lived in denial and has become increasingly out of touch with the world. Despite having tried very hard for years to talk to her about her behaviour and her life, still to this day she remains a stranger to me. Its as if she doesn't have an identity of her own, she is so consumed by the illness, there is no space left for her. I have tried so hard to understand and forgive, telling myself that it is not her fault, but I am left with the feeling that I was deprived of a real mother. The painful memories outweigh the positive ones.Her denial is not my fault.
Anonymous
Hove
December 30, 2011
relating
I was raised in an OCD home as well my mother lost her house she came home from school one day and the house was burnt to the ground. My whole childhood was ordered and doubble checking and making sure the heaters all had a 4' bare space about. i understand whats it like. I am proud of this girl at 11 knowing that this wasnt right for her life and getting out. that alone shows how strong you are. I only hope when i have chirdren I wont follow in my mothers steps
Anonymous
Richmond, VA
November 24, 2011
A note...
I have to say, as an adult child of a mother with OCD, who did live with her until the age of 16, that I am horrified by the guilt laden in many of these comments. A child is not the caretaker of the parent, no matter the parent's troubles, and to suggest or imply that a child should have been more compassionate at age eleven, and "done more" re: fears is to what is known as "parentification," and can have detrimental effects lasting well into adulthood. I would think that a mother who is trying to heal would want the best for her child, and in some cases, the best may be to not live under the same rules and strictures as the mother. For me, I became subsumed by my mother's rules and my growth and emotional maturity were severely stalled by them, as well as by the very guilt that many of you seem to wish to perpetuate. Please remember that a child is still the most vulnerable one in this situation, and that the symptoms of mental illnesses can be very frightening and disabling to them.
Jerusha
ON, CA
July 3, 2011
Insanity Ruins Lives
Legal definition of insanity: a defect of reason as a result of mental illness, such that a defendant does not know what he or she is doing or that it is wrong.

I suppose if you have OCD but understand that washing your hands 100x a day won't make you any healthier, then you're not insane. Just crazy (because you still do it anyway).

However, if you honestly believe you're prolonging your life when you wash your hands for the 100th time, then you are insane, because you don't understand that what you're doing is wrong (i.e. washing your hands 100x won't actually prolong your life).

And when you allow your delusions to ruin relationships, then you're not only acting insane, but extremely selfish as well (as if the whole world revolves around you and your "disease", and everyone else should accommodate you... even 11 yr. old girls). That's not how the real world works.

Disease underlies most all cases of insanity. They don't call mental illness "mental healthiness", after all.
walter
LA, CA
February 22, 2011
I do not like it.
I have a mother that is a little bit more anxious than others and I am suffering from anxiety pretty often myself. I would not agree with author of the article that she could walk out at age of eleven. At least she could wait while she was older. It was her mother after all.
Anonymous
OP, KS
kansasjewish.com
January 24, 2011
Excellent suggestions Basha!
I love solution-based thinking!
Thank you for the tips which I can pass onto one of my adult daughters who suffers with OCD.
It is wonderful that you have learned the value in working with the problem; a lesson learned by many famous people who did great things using their disabilities to their best advantage.
Tzipporah
Bremerton, WA/USA
January 21, 2011
OCD - gas burners
I find that WORKING WITH my problem instead of against it - works for me.

8:00 pm - shut the breaker on the stove
and place a folded red towel by the bottom of the front door.

That way - you do not worry - did I turn it off? impossible ! the breaker is off.

Door locked - just glance over at the red towel.

Whatever - works for YOU.

Even a simple Children's Chore Board - you can check off things.

I call this - APPEASE (it)

Bless u all - for sharing & caring.
:)
helped me.
:)
Basha Cullen
Hallandale, FL
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