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Two Pictures

Trying to Understand My Child

With his cousin’s arm around his shoulders, my son is focused, smiling at the camera and the world. He is fully present, just another boy on a day trip to the zoo. Yet the previous photo, snapped just a moment before, tells a different story. Before his cousin’s gentle touch guided him back into reality, he was somewhere else entirely, his vacant expression and flat affect advertising his isolation from those around him. In the space of that magic touch, my son traveled worlds, transformed from a lost soul into a found one.

It would be so easy to frame his smiling self, and pretend that this single shining moment defines him. Perhaps others would choose to dismiss this moment as an anomaly, and embrace the other photo, the one that captures his otherness. Certainly such a position would decrease the tension and responsibility I feel at every moment. Yet these photos are the two sides of my son, and I struggle to embrace both of them, despite their extremes.

He lives in the chasm between these two worldsI recognize that neither photo tells his story. He lives in the chasm between these two worlds. As his parent, I constantly struggle to locate him amidst these shifting sands.

There have always been two photos. In nursery school he had a best friend, and they shared an unusually close relationship. Yet to his teacher he was standoffish and removed. “I don’t feel like he relates to me the way the other boys do,” she explained to me towards the end of the year. “Maybe there is a language issue.” I looked at this woman, who had taken my son into her home overnight when I had to spend a night in the hospital, and I trusted her judgment. That was the beginning of our quest into the world of speech therapy.

Since our family is bilingual, my son received speech therapy in two languages. Today he moves between the two with fluidity and ease. His vocabulary is large, and he utilizes it well. Yet the issue remained—that vague unease that made his teachers turn to me again and again to say, “There is something here that I can’t put my finger on; something is going on under the surface.”

Parents face a constant struggle over how much to intervene. Too much parental intervention is stifling. Not enough is neglectful. There is a part of me that would like to let whatever lurks under the surface remain under the surface, unlabeled and undiscussed. Sometimes this part of me tries to convince me that this will protect my son. How can something exist if nobody acknowledges it? This is the emotional equivalent of the riddle “If a tree falls in the forest.”

Yet I would never tell a cancer patient to just let their disease lurk in the forest unheeded, as though ignoring their growing disease would alleviate its menace. I would tell them to fight it, even if fighting it entailed solidifying the menace into something tangible.

So we fight. Yet progress is not linear. For every step I take towards acceptance and understanding my son, something in me takes a step back, rejecting what I already know to be true.

“We all space out,” I tell myself. “So what if he doesn’t realize what he is doing sometimes? How much self-awareness does a kid need anyway?”

This works for a while, until it doesn’t. One night, as I am putting him to bed, he kisses me gently on my face and my ear. The pain is sudden, sharp, and unexpected. He has bitten me.

I struggle to hold onto my awareness of his strengths and limitations at all times“You bit me,” I exclaim, pushing him off my lap. He is as surprised as I am by his action; somehow he slipped unaware over the boundary between love and aggression. As the bruise on my ear swells and burns over the next few days, once again my defenses crumble.

The hardest part of this whole thing is that you wouldn’t know anything by looking at him. You wouldn’t know the love and gentleness that he is capable of. You wouldn’t recognize his capacity for aggression and destruction either.

Yet as his mother, it is my job to know. I struggle to hold onto my awareness of his strengths and limitations at all times.

I struggle to hold two those photos in my heart always, even as I frame only one of them.

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By Robyn Cuspin   More articles...  |   RSS Listing of Newest Articles by this Author
Robyn Cuspin is a therapist living in Israel.

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Reader Comments
Latest Comments:
Posted: Mar 24, 2011
Stay away from labels unless really useful
Hi Robyn,
Don't know if my previous comments will get posted but wanted to thank you for sharing such a deep personal struggle. I too am a therapist and share the same concerns about my beautiful daughter. I havev taken her for testing and whilst she does not meet criteria for Autism spectrum at this time many of the symptoms- hard and soft- are there. But, as I continue to wrestle with this and take action (- have scheduled her to see a neurologist bbut ONLY one that I know is NOT quick to label) I have to ask myself what a diagnosis would do? Would it help me excuse her "bad side"- no. Would it give me tools to better understand her-I can do this without a formal diagnosis. I find society is quick to label and judge and I do not need to add to this for my daughter. I have already found that if I have mentioned Autism Spectrum to her school principal or other parents they are quick to pidgeon hole her or " withhold playdates". So I have decided that any diagnosis will only be for ME
Posted By Helen ?, Toronto

Posted: Mar 23, 2011
I find your attitude towards your autistic son disgusting! When a person has autism, or anything else that makes there mind water, they dont necessarily realize what they are doing. its not right to treat him as a weirdo when its really not his fault. try to imagine how he feels.
Posted By Re: You have described my son, Brooklyn, 11213

Posted: Mar 23, 2011
Sensory Integration
Did you think about exploring sensory integration? This is when their senses are overloaded, either understimulated and they create stimulation or overstimulation and it makes them feel chaotic. Occupational therapy can help, changing their diet to take out sugars and food coloring are a start. Good luck!
Posted By Pnina, Tzfat
via chabadillinois.com

Posted: Mar 23, 2011
Autism
Yes, I would suggest autism.
My 3 3/4 yr old nephew has autism, and the things you mentioned sound very similar.
Well worth checking out the symptoms on-line as diagnosis is often very long-winded.
All kids are a gift, but knowing how to relate to them truly unlocks wonders :)
All the best!
Posted By hopeful, nyc

Posted: Mar 23, 2011
The picture in the frame.
Dear Robyn,
Thank you for the honest and insightful description of your son's struggles with self-regulation...and your struggles as a result. For all his at times frustrating [to you both] unpredictability, your love for each other is evident in every word. May those times seen in your "framed" picture increase in frequency and duration, and may you two grab those transcendent times of joy or quiet times of peace with both hands as you live the mystery.
Posted By Paul Slocumb, Cape Elizabeth, Maine

Posted: Mar 23, 2011
Don't give up....
As a mother of two now grown sons with "differences" in life, and as a professional in the field of special education, I strongly urge you not to ignore your son's symptoms and to actively search for answers. As you say, you wouldn't ignore a patient's cancer. I equate "it" with diabetes, usually caused by a chemical in-balance in the brain. And whether they can communicate it or not, these kids are hurting inside. Hatzlacha, thanks for sharing.
Posted By Anonymous, Woodland Hills, USA

Posted: Mar 22, 2011
I read your article on Aish
I am sorry to read of your puzzling/disturbing situation.
You don't give us any background information. You don't say how old your child is, 5, 10, 15. You don't describe your child's upbringing, who cared for him since babyhood, nor what your parenting methods are. How do you react when he hurts you or almost hurts you? There's no mention of a father on the scene. Is he there? If so, how does he react to acts of aggression? How does your son do each day in school? Does he play with other children? Does he hurt them?
Biting, choking, throwing, ruining things - sounds like an angry child.
Why is your child acting in this way? What message is he conveying to you? Isn't he old enough for you to be able to ask him, "Why did you bite me?" "Why did you ruin that?" What does he answer?
Lots of questions .. And I wonder what you want to hear from readers.
I wish you success in getting to the bottom of this.
Posted By Judith

Posted: Mar 22, 2011
autisim?
My friend's son has autisum, Asperger's. I do not know what your son has or how it develops or when or what can be done about it. Staying physically connected clicked for me.
Posted By Anonymous, Vienna, Austria

Posted: Mar 22, 2011
Aspergers
I am in agreement with the comment above. There is help out there, together with suggestions for managing your son. As you say, ignoring it will not make it go away. My grandson was diagnosed at the age of 12 and is about to be 20. He manages socially and in the workplace and has exceptional musical talents. One of the most helpful comments I had from a psychoanalyst many years ago was that, Aspergers is 'extreme male behaviour' just as 'hysteria' is extreme female behaviour. There are many experts out there, I wish you well. Kol tov.
Posted By Anonymous, London, U.K.

Posted: Mar 21, 2011
Your son
Robin,
As a mother of two boys I understand your ambivalence about exploring your son's behavior in more detail. Our children are the most precious gifts we have been given by G-d. It is frightening to think there is a real problem. But I am also a child psychiatrist and know that no one knows a child as well as his mother. You're seeing something, don't be afraid of it. Explore it with a trained professional. If there is a problem, childhood is the time to intervene. Early intervention can make a major difference for many kids. And if the doctor tells you there is no problem, or it's minimal, you will sleep much better.
Posted By Rosalie Greenberg, M.D., Montclair, New Jersey



 


Joys and Challenges
More Than Words
Recognizing All I Do
My Son’s Badge of Honor
Two Pictures
Baby Me
Out of Bounds
Regaining the Throne
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